Toggle navigation
Home
About Us
Rett Syndrome
News
Research
Blog
Stories
Conferences
Links
Sponsors
News Archive
July 17 2023
Licensing agreement for trofinetide expanded
March 13 2023
Breakthrough neurological drug comes from Dame Margaret Brimble's lab
March 10 2023
FDA Approves Trofinetide for Treatment of Rett Syndrome!
February 1 2022
Impact of Living with a Rare Disorder in Aotearoa NZ
January 22 2022
Rett Syndrome - Mother of Trofinetide
February 18 2021
Rare Disease Day : Sunday 28 February 2021
June 30 2020
A Chat with Professor Sir Adrian Bird
February 8 2020
2020 Conference Postponed
July 27 2019
JOSIE TURNS 5 and is FEATURED ON TV!
February 25 2019
WORLD RETT CONFERENCE
February 25 2019
Excellent articles from Rett Ed
February 25 2019
National Institutes of Health Post on Rett Syndrome
February 25 2019
An interesting article on a duplicated Rett gene for those of you interested in Genetics
February 25 2019
Congratulations to Steph and Dale Stewart
February 25 2019
Steph & Dale
July 12 2018
TV ONE - ATTITUDE
May 11 2018
Margaret Brimble becomes first-ever Royal Society fellow
April 19 2018
A lovely article about Rett
December 12 2017
DATES 4-6 May, 2018 CARING AND SHARING Conference at Novatel at Ellerslie
December 12 2017
HOOLIGANS AND NIKKY $500 DONATION
December 12 2017
MELAH'S FUNDRAISING $804.13
December 12 2017
ANZ And DAVID HISCOE
November 6 2017
RETTNZ Annual Report 31 March,2017
October 30 2017
Nikky van Rooyen
October 28 2017
OCTOBER AWARENESS
October 28 2017
CARING AND SHARING ELLERSLIE NOVATEL 4-6 MAY 2018
October 28 2017
WENDY BRENKLEY Our New Complex Care Adviser
October 28 2017
FDA CONFRIMS Phase 3 plan for Rett syndrome
October 28 2017
ANZ BANK, Joan & John Weaver and Mrs Lyn O'Connor new Conference donations
March 24 2017
Success of second clincial trial with Trofinetide
March 22 2017
Trofinetide trials for Rett Syndrome
March 20 2017
The Diagnosis we all went through
September 18 2016
Rett Annual Report to March 31, 2016
September 18 2016
Towards a Clinical Network
September 9 2016
Marsden Medal awarded to Distinguished Prov Margaret Brimble
September 3 2016
Fascinating tweet from Canadian Rett
September 3 2016
RETT movie
August 22 2016
NNZ-2566 in Rett Syndrome
August 22 2016
An excellent power point presentation of Distinguished Professor Margaret Brimble's work on Trofinetide
August 17 2016
A Harvard study showing a possible new cure in time
August 17 2016
A very interesting article from Neuroscience news
August 17 2016
Promising results from Copaxone Open Label Trial to 10 patients
August 8 2016
A very interesting paper from Dr Hogbi of Baylor
August 8 2016
Microencephaly discoveries help explain non Zika brain abnormalities
February 15 2016
Music before language
February 15 2016
Dr Rosemary Marks
February 3 2016
RETT CONFERENCE
February 3 2016
RETT CONFERENCE
February 3 2016
Life threating breathing disorder in Rett Prevented
November 25 2015
Study suggets MECP2 duplication syndrome is reversible - research led by Prof Huda Zoghbi
November 4 2015
Rett Conference
July 16 2015
Interesting trends in early diagnosis for Rett in Australian
March 9 2015
News about NNZ2566
March 9 2015
MY daughter is a different kind of perfect
March 9 2015
Susan Norwell
December 6 2014
Teaching Rett Girls
November 19 2014
Why Girls
November 13 2014
An article about Distinguished Professor Margaret Brimble
November 12 2014
Exciting news
November 12 2014
Successful Clinical Trials for Prof Margaret Brimble's NNZ2566
September 7 2014
Ipad apps for our girls
September 7 2014
Language Through Motor Planning
September 5 2014
Music Therapy
September 5 2014
Ideas for Music Therapy
September 3 2014
Mayo Clinic - Treatment Suggestions for Rett Syndrome
September 3 2014
An excellent report from Australia on our Rett NZ 2014 Conference
May 20 2014
Conference 2014: Report
April 10 2014
Conference 2014: Education Seminar
June 24 2013
Living with Rett Syndrome: Eye gaze is a game-changer
November 22 2012
New Zealand initiative being trialled with Rett girls in Houston
October 12 2012
Science Daily
March 13 2012
Rett NZ Chair Letter March 2012
March 8 2012
Partial rescue of Rett syndrome by polyunsaturated fatty acids (PUFAs) oil
November 29 2011
Finding Good Apps for Children With Autism
September 1 2011
Rett NZ Chair Letter Sept 2011
November 1 2010
Newsletter: RETT syndrome association of Australia
October 26 2010
Girls with Rett syndrome find their 'voice' in Eye-Gaze Technology
October 1 2010
2010 Visit of Susan Norwell - New Perspectives on Communication
September 13 2010
Congratulations to Rett supporter and Tennis star, Vera Zvonareva
July 19 2010
Silent Angels by Ayme Sanchez
May 14 2010
2010 Conference - Memorable
March 31 2010
RettNZ - Trustees Annual Report 2010
March 1 2010
Short video shows how Rett Syndrome affects development.
January 1 2010
Introducing Our Newest Rett NZ Ambassador, Mr Haemish Crawford
January 1 2010
Tar Heel Reader - A useful resource
January 1 2010
Rett NZ on Facebook
November 24 2009
Rett NZ at Paediatric Conference
October 16 2009
My visit with Susan Norwell
September 24 2009
Sir Howard Morrison
June 26 2009
Fundraising
May 1 2009
International Rett Conference 2008
March 31 2009
RettNZ - Trustees Annual Report 2009
February 26 2008
OMF charity golf day
November 1 2007
NZORD 2007 Conference Report
October 31 2006
Mike McRoberts becomes patron of Rett New Zealand
October 28 2006
Night of 1000 Angels
March 6 2006
A proud father's view