July 12 2018


Two of our Rett Families were filmed by ATTITUDE for TV ONE's Sunday morning programme.

Lisa and Sarah Holten who have been proactive in helping other families to live with Rett Syndrome and seeking publicity so that others who may not have a diagnosis receive the right advice and help. It was very special that one of our new families, Kendyll and her Mother Steph gave us in insight into how busy life is with a little brother as well as Kendyll needing lots of care. Horse riding is a special event in so many of our girl's lives.

Thank you so much from fellow parents for sharing your joys and your trials on the Rett Journey.