Rett New Zealand is an informal support group providing advice for families and therapists dealing with the complex symptoms of Rett Syndrome. We strive to share the love, acceptance and understanding of other families facing the same daily problems.
We also work closely with overseas groups who have funding for detailed medical research. In New Zealand we work on various research projects with Dr Michael Sullivan at the Christchurch School of Medicine.
Read about our ambassadors Mike Sullivan, Anna Stanley and Rob Pakes.
RettNZ Charitable Trust Charter
Dugald MacBrayne – Chairman
Mark Campbell - Treasurer
Gillian Deane – National Coordinator
Wendy Brenkley - High Needs Adviser