About Us

Rett New Zealand is an informal support group providing advice for families and therapists dealing with the complex symptoms of Rett Syndrome. We strive to share the love, acceptance and understanding of other families facing the same daily problems.

We also work closely with overseas groups who have funding for detailed medical research. In New Zealand we work on various research projects with Dr Michael Sullivan at the Christchurch School of Medicine.

Read about our ambassadors Mike Sullivan, Anna Stanley and Rob Pakes.

Charities Commission Register No. CC11016

RettNZ Charitable Trust Charter

Annual Report 2019

Annual Report 2018

Annual Report 2017

Annual Report 2010

Annual Report 2009

Our Trustees

Dugald MacBrayne – Chairman
Mark Campbell - Treasurer
Gillian Deane – National Coordinator
Wendy Brenkley - High Needs Adviser