February 1 2022

Impact of Living with a Rare Disorder in Aotearoa NZ

For New Zealanders living with a rare disorder today the impact is significant, affecting not only themselves but
extending to affect families and carers, the health system and society. During a time of major health reform and
United Nations recognition of the challenges facing those with rare conditions it is time for specific inclusion in
Aotearoa so we leave no-one behind.

Rare Disorders NZ currently engages with over 125 support groups representing at least 20,000 people living
with different rare disorders