We are so grateful to Dr Rosemary Marks for her on going care and experience she shares with the Rett Families.
A number of families said they were interested in the genetics of Rett so Rosemary has arranged a Geneticist to start the conference.
We are almost there with the formal programme. Just a few tweaks so everything can be fitted in.
Wendy Brenkley has a very interesting afternoon about care and packages which can be used to help your family access funds to help with your daughter's care.
THe amazing Susan is back again and we are so thrilled she is able to give individual lessons which have helped the girls so much.
Looking forward to seeing you in just over two weeks time.
IBIS HOTEL ELLERSLIE. A welcome drink on the Friday night at 6pm with a night for you to do your own thing or join others at a pay your own dinner at a nearby Chinese restaurant.
Conference breakfasts, morning tea and Sat lunch and dinner are included..
Well done to Dugald with his negotiations with the Hotel and Mark with his Medical Specialists and Wendy with her amazing Care speakers.